Category: Conferences

Expert by Experience – what does this mean?  15th October 2020

This online interactive event will explore the concept of Expert by Experience in Patient and Public Involvement

Experts by Experience in Patient and Public Involvement: What does it mean?

About this event

This event is open to members of the public, patients, carers and researchers.

Patient and Public Involvement (PPI) is research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. Experts by Experience are service users or carers who are experts through lived experience of illness or services. Experts by Experience are one type of patient or public member that can contribute to PPI.

We invite you to take part in this interactive event, sponsored by the Health Research Board, which will explore the concept of Experts by Experience in patient and public involvement, what this means, as well as distinctions from, and overlaps with, other terms. The development of recommendations to assist in accessing and recruiting Experts by Experience in patient and public involvement will also be explored.

Tickets are free of charge, but places are limited.

You must have access to or have downloaded Zoom in order to attend this event.

Please note this event will be recorded so that the thoughts and ideas shared at the event are captured. Should you wish to turn off your camera during the event you are free to do so.


The event will commence with an opening address and welcome at 10.00 am.

Keynote speaker: Dr. Alison Faulkner (Survivor, Researcher and Trainer)

Panel discussion with:

Martha Griffin, Expert by Experience, DCU

Patrick Nwaokorie, Mental Health Engagement HSE

Dr. Louise Hopper, Principal Investigator of CAPTAIN project, DCU

Kara Madden, SAGE Representative, Patient Representative on Patient Safety Strategy

Followed by World Cafe

Closing address by Dr Jim Walsh, Expert-by-Experience and Training and Development Officer, Irish Advocacy Network

Public and Patient Bursaries

A number of public and patient bursaries are available to attendees. These will be provided on a first come first serve basis by emailing Applications must be received by September 30th.

Further information

Sophia Kilcullen, Research Fellow, DCU PPI Ignite, School of Nursing, Psychotherapy & Community Health, Dublin City University



Conference announcements and call for abstracts for Critical Voices Network Conference in UCC.

This year’s conference title is “CREATING SAFE SPACES IN MENTAL HEALTH SYSTEMS: CRITICAL PERSPECTIVES”. Although of course creating safe spaces is  particularly appropriate and relevant at this very moment, the title and theme was decided upon well before the corona virus outbreak. As you are no doubt aware, concerns continue to be expressed that mental health systems do not provide safe spaces for people in intense distress. Indeed, it is often the opposite, with people referring to experiences of de-humanisation, coercion and re-traumatisation. Acknowledging such concerns, the conference focuses on the importance of developing and providing safe spaces for people experiencing distress. The conference offers opportunities to examine:
• what we understand by safe spaces in mental health systems
• what makes it so difficult to offer safe spaces
• the increasing use of coercion and forced treatment to try and maintain people’s ‘safety’
• what safe spaces may look like and how these may be experienced by people in distress
• ways to support people in intense distress in spaces where they feel safe and respected
Please see below  the conference flyer and call for abstracts in the attached. We hope to see you again in November, and if not, then November 2021! We’ll keep you posted on developments. In the mean time, we look forward to abstracts in relation to the conference’s theme.
Please share with your own networks as appropriate. Thanks.
Lydia Sapouna and Harry Gijbels
Conference Organisers